Every year the team from Fluent Finance Abroad likes to help with a bit of sponsorship for Debra Spain and their annual golf event, which is held in Marbella at the Aloha Golf club in Nueva Andalucía.
Debra is a cause close to our hearts, as EB, Epidermolysis Bullosa, also called Butterfly Skin is an incurable, rare and serious genetic condition that affects the skin where it becomes as delicate as a butterfly wing. Simply touching the surface of the skin causes severe blistering and wounds that never heal. Blistering also occurs internally (in the mouth, oesophagus, intestine, airways, urinary tracts and even the inside of the eyelids) leading to further suffering and serious health problems.
DEBRA Spain was founded in 1993 and is a non-profit-making organisation that provides support and helps to improve the quality of life of those affected by EB. The charity works hard to provide the following:
– Emotional and medical support to families and carers, as well as social services professionals with information and guidance
– Fully trained nurses who travel throughout Spain visiting families in their own homes
– Information and advice on all aspects of the disease, coordinating with doctors and health services to ensure patients receive the correct treatment
– Support for research programmes into a possible cure
– Events and activities to promote awareness and raise funds through numerous events and charity shops
– A number of yearly national meetings to bring affected people together, as well as conferences for medics and other professionals
– A link to DEBRA in all other countries
– Continuous work to obtain private and public grants.
You can find out more about this amazing charity here: https://www.pieldemariposa.es/
Should you wish to take part and support this worthy cause, here are the details of their next event:
XVII Butterfly Children’s Golf Tournament, June 8
- Saturday June 8.
- Play at the prestigious and renovated Aloha Golf Club
- Prizes at each hole and more than € 10,000 in gifts!
- Picnic and trophy delivery
- Modality: Stableford Individual
- Price: € 85
- BOOK YOUR PLACE NOW!
XVII Gala Butterfly Children, June 9
- Sunday June 9
- Aloha Golf Club Restaurant
- Enjoy a magical evening and a delicious dinner under the stars, with live music and prize raffle
- Price: € 65
- BOOK YOUR PLACE NOW!
